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Manx MSA Trust Funds Research Project

Post in Manx MSA news on 23rd May 2017

Manx MSA Trust is pleased to announce the commencement of a clinical research project aiming to identify an 'early diagnostic' for Multiple System Atrophy (MSA).

The project will examine protein aggregation biomarkers around this much mis-understood disease. This 12 month project is being Funded by the Manx MSA Trust who would like to make the Island a hub for better diagnosis of this illness. The project was initiated by Courtenay Heading of Jurby Wellness by calling on the Scientific expertise of: Protein Technologies headed by Dr Farid Khan and CynapseDX headed by Damian Bond.

The collaboration team is completed by Consultant Neurologist Dr Valeria Iodice along with her colleagues at University College London Hospitals NHS Foundation Trust. The ethics and Regulatory Compliance supervision is being undertaken by the Liverpool bio-bank for blood and human tissue in the UK, and it is hoped Manx patients will get an opportunity to take part, subject to Manx Ethics Committee recommendation and subsequent DHSC approval.

The Manx MSA Trust is very grateful for all its support since we set up almost 18 months ago. You have donated over £70,000 to be put towards an MSA project(s) which is a fantastic sum. Our thanks goes out to everyone who contributed, be it directly, through an event we hosted, company sponsorship, donated raffle prizes, your time, services provided to or an event you've arranged on behalf of the charity, thank you all. Very generous. Lets hope for more good news later in 2017 and beyond.